Hola Blogsphere!!
Well I've been missing for a while now, I've written several blogs in my missing time I just haven't posted them.
After going for assessment and finding out I do need a double lung transplant the world kind of fell apart. It really did feel that i'd sunk a long way and couldn't find my way up. I am now on some tablets o make me happy and they seem to be doing me the world of good, even if it's a placebo affect as I don't actually think I've been on them long enough for them to work. I would also put some of my change in mind set down to a rather fun night out with friends last Friday which started with a free bottle of bubbly!! And also my rather special husband just being his very special self which keeps me sane.
It's such a tough decision to make, a transplant is in no way a cure but rather a change from one set of problems to a different set of issues. And I can' get my head round the waiting for that phone call. They've told me because of my small frame, common blood type, and the fact I have antibodies that it could be a 2 year wait. There is just so much I want to do that I just couldn't if I was on the transplant list. At my work I get a 3 month paid sabbatical next year and the thought that it could be spent waiting for a transplant call doesn't really fill me with joy. I'd always envisaged my sabbatical being filled with holiday adventures. But then I think of my friends who are already on the transplant list and they seem to have rather full lives. It's just such a huge decision to make and one i'm not going to hurry in to.
It was a bit of a sad week really as I went to see my GP for the last time. He has been quite a support where PH is concerned as he had previously had a brother & sister who had it as patients in London. He was the first doctor I saw who realised I had a heart murmur and that there was something wrong. It's very common with PH that it goes mis-diagnosed for years. I was lucky that he was the second doctor I saw with my symptoms. But he is now leaving my GP surgery. So now I get to teach a new doctor about PH. The new doctor is a female, I've not had good experiences with female GPs in the past but hopefully she will be eager to learn, and will appreciate having a patient who's not run of the mill.
We've been out sofa bed shopping today, oh the excitement of being an adult!! I've finally accepted that my spare room is ever going to be a nursery or a childs bedroom. So onwards and upwards it's going to be a nice spare room with a sofa, new computer desk, and just generally not the dumping ground that it is now.
Our bathroom will officially be finished in the next couple of weeks when we have the new carpet put in. It's only taken 11 months which in the Pegram house is quick! Mr P is very good at a spot of DIY but we do seem to start new projects before we've finished old ones. But that's just the way we are. Mr P should be very proud of his bathroom it looks fantastic. I'll post pictures when it's finished.
I'm hoping I get to see my Mum & Step dad tomorrow, I haven't seen them in 3 weeks as they have been on holiday and then when they got back they have both been ill with cold/flu type bugs. I just can't risk catching anything off of them. I've already been off work at least one day per month for the last 4 months. I really don't like letting the people at work down. And they are starting to get a bit twitchy about whether i'm overdoing things at work. But I've just been really unlucky with the amount of bugs that I've caught.
Best go blogsphere before I completely bore you, and I have a roast chicken in the oven that needs basting.......
Have a good week xxx
