Home Alone

Well it's been a busy weekend in the Pegram House. Joss went off to Cardiff for a friends stag weekend. I have to say I was quite anxious about him going away, Joss over the last 3 years has become my security blanket, and I have to admit I felt quite vulnerable on Friday after he left and I was home alone with the cat.

That was until my lovely family turned up, Natalie came round for Pizza, and Mum & John turned up for a cup of tea. The cat decided she was going to spend the evening plonked on Aunty Natalies lap.

Saturday morning was my 4 weekly visit to Hammersmith hospital in London for the clinical trial drug i'm taking (i'm going to do a seperate blog about my thoughts on clinical trials). Mum came with me, it's usually Joss who comes with me but as he was in Cardiff Mum came. Rather suprisingly we had a lovely day, we did lots of chatting, and Mum got to ask the lovely Dr Skinny Jeans loads of questions that me and Joss never seem to think about asking (she described Dr Skinny jeans as easy on the eye!).

We then decided that we'd stop off at John Lewis on the way home. I didn't buy much but my main weakness is nail varnishes. I bought 2 new sets of Andrea Fulerton colour layering systems one blue & one purple, I could have bought loads as they had some really nice colours. The christmas decs in John Lewis weren't that good this year so didn't buy any.

Spent some time over the weekend on my other weakness...... watching films. Watched The Young Victoria on Friday, I love that film not least as a lot of it was filmed at Blenheim palace which is just down the road and to which I usually have an annual pass to. Friday evening I watched Made of Honour which was a typical easy watching RomCom (Natalie said I couldn't watch Stardust.... I had only watched it a week ago).

Saturday nights film was The Adjustment Bureau, which I thought was really good, and made me think..... what if our lives are planned out and we don't have a choice what happens..... well I for one would say with all the rubbishness in my life with my health, whoever is making the choices isn't doing such a bad job. You may be suprised by this but I'd rather have this disease, my family and my husband, rather than have perfect health and nothing else.

Best sign off now it's time for Stictly results :-)

first ever blog

Well This is my first adventure into the land of blogging.... hopefully it will go well. I'm not really sure what i'm doing so far.

I'm going to use this blog to keep a record of my life. So first things first who am I, well my name is Lynsey, I'm 35, I live with my husband and my cat Casey (she's a princess). I have a disease called Pulmonary Hypertension which I try to not let define me. I work for a social housing charity.

I guess the main reason I have started this blog is that i'm just about to venture down the transplant route. Well I say venture I think i'm more dipping my toe in at the moment. Basically my consultant thinks i'd benefit from a third treatment for my PH, but I can only get funding for 2 treatments, the only way to get a 3rd treatment is to go down the transplant route. Also they don't want to rush me down the transplant route they don't want me to make a decision at a time where a transplant is really really needed. What is likely to happen (fingers crossed) is that I go for transplant assessment and they'll tell me i'm too well. This will then be reviewed periodically until I get to a point where i'm not too well (fingers crossed again that this will be a while away.

Anyway think that's enough waffling for my first blog. I'm going to try and keep this blog going but i'm not known as a starter finisher...........

Bye for now blogland xx