How lucky I am

Hi Blogsphere,

Sorry for abandoning you for so long, it's been a whirlwind of a few weeks.

So this blog is dedicated to My lovely Mum as it's Mothers day tomorrow. My Mum is a very special person, I really couldn't ask for a better Mum, she's not only my Mum but my friend. I know she'll support me in everything I do and every decision I make. She, as always, has been such a support over the last few weeks. We've not had it easy over the past 18 years or so, our little family seems to go from one challenge to another. But that has made us a strong family. Mum's kept us all in one piece, I really don't know how she does it sometimes, it's often just a look or a much needed hug but she manages to fix so many things just by being Mum - so happy Mothers Day Mum  x Love you.

This week has been quite a challenge, i've found myself struggling to pick myself up this week. I'm really trying but it's been quite a challenge, i've just found that my moods been really low. I've also been exhausted. If you ever get the chance google (other internet search tools are avaliable!!) The spoon theory. It really does explain what it's like having a disease like PH. The basics are that you start each day with a certain amount of spoons, you use a number of spoons to be able to do tasks throughout the day. It shows the need to use your given spoons wisely each day. Well this week I have not used my spoons as wisely as I probably should have, but I had fun. Usually I store my spoons for work cause even though I just sit at my desk I need energy (or spoons) to concentrate and use my brain. This week however I've been out every night after work so my energy levels have slowly been depleting all week. I ended up on Friday completley exhausted. So today has been mainly spent sitting recharging my batteries.

This morning was spent watching Eternal Sunshine of a spotless mind which I haven't watched in years.

This week has been a holiday based week too. We had to pay for our cruise to Iceland & Norway (gulp). I also booked to go away with friends to Longleat center parcs. Both holidays have had there challenges in terms of my PH. We can now book the shore excursions for our cruise. Now the problem i'm having is that most of the trips go up mountains, and if the trip doesn't go up a mountain then you have to go up a mountain to get to somewhere on the other side. Now with PH high altitudes aren't particularly good as the concentration of o2 drops, making breathing difficult, and possibly causing all sorts of trouble to my insides. So i've had to check with my PH centre how high I can go before booking any trips. The center parcs holiday has also brought troubles as center parcs is a big place and you can't use cars to get around. So I have found myself giving in and i'm going to hire a mobility scooter........ but it will be good, and I won't have to worry about holding up my friends, and they won't have to worry about me walking too much. And at the end of the day it will give me more energy to drink more Strawberry vodka!!

We have a new addition to our house..... an exercise bike!! we've decided that we both need a bit more exercise (well any really). So next week once my energy levels are back up it's all change. I'm going to do some exercising, i've got a DVD with exercises aimed at people with PH. I'm hoping this will give me a bit more energy, and should give me a bit more positivity.

We've also decided to make one of the things we did this week a regular event. On Wednesday we went off to Fat lils, a local bar / gig venue, for their acustic night. We went this week as one of Joss' friends was playing. But I have to say the level of talent was incredible. So we'll hopefully be going to the once a month event from now on. I forgot how much we both love listening to live music. We haven't done it in such a long time.

Well best go blogsphere before I bore you too much. May post again soon as i'm sure I had loads of thoughtful things to say last night, but I can't remember what they are now...... and if I end now maybe no-one will notice I haven't mentioned the elephant in the room beginning with T (I promise I will mention it soon, just not yet).

Have a good week. And happy Mothers day to all my Mummy friends, whether you're Mum to human children, or animal children you're all special. xxx